Tuesday, 7 January 2014

Big year ahead

We've been away on a much needed sea holiday ... but it turned out it was exhausting  (still very nice though).

Upon arrival, Eden's skin looked like this: flared up and irritated and slightly infected again.

But as soon as we got to the sea, Eden (who doesn't bath), bravely jumped and splashed into the sea and the amazing healing properties of the salt and the ocean cleared the infection up in a day!!!

Unfortunately we had to endure a lot of sun (December is the hottest time of the year in SA) and hence Eden got a bit too much sun and got slightly sun tanned ... which resulted in a flare, peeling and insane itching  ... so we kept her indoors for the last couple of days (went for beach walks in the late afternoon but that was it).

Here are some pics of the first week of our holiday (Eden enjoyed it, despite her skin and no one stared as everyone else was sunburned and red LOL!!! ... so she looked pretty normal)

Towards the end of our holiday, Eden mostly walked around with her umbrella shielding herself from the sun but at least still finding a way to enjoy herself.

Oh and did I forget to mention that Someone had her very special 10th birthday just before Christmas ... lucky girl ... she doubled up on gifts this year.

She also sat on Santa's lap and asked him if by any chance for Christmas she could have a healthy skin ...  Santa was so kind he asked us if he could please pray for her (which we allowed) and it was just such a magnificent moment to show children that even the Great Santa ... prays to God (who is the true Healer and Giver of gifts).

Then on New Years Eve our family decided to lit a lantern and send it into the sky ringing out the old and in the new ... hoping the new year to bring health, miracles, happiness, peace and normality.

As my husband and I stood on the balcony of our holiday home toasting the old year away with some sparkling red grape juice I just broke down crying ... it felt like 8 months of tears I have just held in, trying to be strong, carrying Eden and myself ... and everyone else that's confused and worried about her condition ... it was tears of a long, exhausting and intense year and just absolute relief of knowing the year has ended.

This might actually be the year when the end of TSW is in sight.

After 2 weeks of holiday, sun and sea we are back home  ... and currently Eden's skin is looking beautiful compared to before the holidays started:

Can still see the elephant skin on her elbows:

face is looking beautiful and clear

neck is more clear

Despite the spots, her arms look a lot better and less red 

tummy is perfect and soft

back is similar to her arms witht he spots and thick pinkish skin

legs have been the slowest part to heal but even here it looks a lot better

also elephant skin, pink skin and spots but the infection and flare up is gone for the moment. As always so incredibly grateful for the light at the end of the tunnel.

To all our fellow TSW sufferers:

May this year be the year of complete (or almost complete) healing, happiness, health, peace and prosperity for all who suffer from TSW...may your one day (in the near future) reflect back upon this time and see the growth that have occurred, recognize the blessings that you received and cherish health and the precious gift of your bodies... that you can all become a strength and a pillar to others who are suffering ... may this trial never break you ... and if it does (because it might) ... may it do that only to build a better you again.

All our love


  1. Lots of improvements! Her tummy looks great! It's a sign of things to come.

    The holiday looked like lots of fun and the sea is a great therapy.

    Edens smile has brightened up my day.

  2. thank you Louise, I am sorry that you are going through another flare and had that terrible experience ... let's hope this will be the year of complete healing for all of us xxx

  3. Eden looks wonderful!! i can see huge improvements in her skin! I love her bright smile! So happy you were able to all get away! :)

  4. Hi Tracy

    You are also looking fantastic! You have gone for (if I am not mistaken) UV treatment and reduced moisturising ... is that correct? How is it working for you? Winter will be here as from May this here and I will probably send Eden for that treatment as she's 1 year cortisone free and I find her flares are the worst in winter.

    So happy you are doing so well ... you're almost at the 1 year mark!! YAY! :)